Summertime always brings it’s fun and it’s intriguing moments. For most it brings a sense of freedom to play without an adult telling the rules like school. Summer is where you get to see the different styles of play. We tend to visit the park quite often and it’s an interesting contrast when it comes to my kid and everyone else there. I admit I do wait for the day where I see my daughters sense of play progress. It’s easy to fall into the trap of comparing which I agree it’s not good to do. When I see her play at the park along the side of kids her age group I do see the difference. Everyone is running around and playing together meanwhile she’s very content to pushing around a stroller with her toy in it or spinning around on some device for hours. Yes there’s a secret wish in me that magically she starts to play like them but I know better than to compare and want that. The fact is my daughter is very happy playing the way she does and that’s good enough for me. Some kids may snicker at her when they see her but it doesn’t seem to faze.
Today was an interesting day. Went an appt at sick kids for lasix which proved to be interesting. Came up against all of her sensories in one appt. With a little bit of coaching she made it through nicely.
Most amazing part of the day was our trip on the GO train after. Some context is needed to really illustrate this. This is a girl who didnt really speak a word until she was about 4 yrs old let alone want to be around other people. Now back to today. We found a seat on the go train and this is the one transportation vehicle she likes to stand up. Next thing i turn around and shes standing in front of the Go train worker having a almost conversation which completly surprised me in a way but in some ways it shouldnt. Makes me proud as a parent who has worked so hard outside of speech therapy to help her have a conservsation and be comfortable around others. I know some of what she said wasnt clear but the man tried very hard to understand her. In this picture i took i was still in the seat watching her allowing her to navigate the conversation.
I sit here on a bus this morning watching a man with down syndrome organize everything he has before he gets to work. I can’t help but think of my Lil girl and what the future might hold for her. She does have some talents like singing and loves to be around people. I’m doing all I can to prepare her for what lies ahead, I just pray shes able to lead a life of great meaning being able to do what makes her happy. I know we have all have these thoughts wheter our kids are special needs or not but I think it’s more microscopic when special needs is involved. Right now she’s a happy 12 year old so I try not agonize over it too much. Well I’m gonna end it here because my stop is coming up but those of us in the special needs community keep strong because we’re all in this together.
This was unlike any other christmas in the past 10 years. With my child becoming more verbal there was the pointing out of what she wanted for christmas whereas previous years she didn’t really acknowledge what she wanted or christmas for that matter. With that happening it made christmas so much easier in a way. They say to manage the stress and anxiety that asd kids get at this time of the year. I think we did a good job since there was no family functions to be at and purposely avoided going to the malls. I knew there was excitement because at the beginning of November I was getting asked if santa was coming yet. As the big day got closer and we counted the days the excitement grew tremondously. We have a tradition of going to church christmas eve and christmas day. This we planned perfectly to be there nice and early cause last year we weren’t and had to stand during the whole time which wasn’t fun for her. The added bonus was a friend spotted her and they spent part of it together which was cool. I worry about her making friends at school until I see that happen. Christmas morning was exciting. She woke up and she’s asks me “did santa come?”. It was nice to see her get excited about christmas after be worried all these years it would just be another for her.
Merry Christmas and a happy new year to all my followers!
Today is one of those really good days. My daughter just started doing a reading buddies program at our local library. Its a great program where teens volunteer to read with the younger kids. Its great for her to participate in this for the social aspect. There was a time i would be rattled with nerves but not tonight. Even though its only 45mins its nice to have time to myself to think. Happy to say it went quite well for her. We also went to parent workshop about iep and iprc. Basically its what helps your kids get support in the school. Even ive dealt with this stuff a few times it was nice to learn some new stuff. Like for instance the alternative education section which pertains to things not educational. For some thats feeding for us thats tolieting. That has always been a struggle. She still uses diapers everyday which isnt a bother really. They say pick your battles. Well thats a battle ive picked and tried that has resulted in loads of extra laundry. We decided just to go back for time being. That was after having a heartfelt conversation with her teacher. A good lesson out of tonight is keep level headed and open minded when approaching the situation. On top of that my girl lasted a 2 whole hours by doing one sensory after another. Hope that helps someone out there.
This weekend the indy cars came our city. I thought this would be a interesting new adventure for my daughter. We took a big gamble and went down on the Friday which is usually free. Now my girl has her issues with sounds. Granted at times its difficult to read what sounds bother her. So we packed everything including her big headphones. We got an hour into the event and started to realize it was going really. Especially when she didn’t want to move from her seat until the cars finished. Thankfully there was a area setup inside a tent that was showing the track action. That was an area we used to calm and get a break. Thought it was a one day thing then she wakes up this morning asking to go today.
I admit I’m really happy this worked out because I never thought it would happen. I find
another lesson in trail and error. I’m always asked how we do it. I just say take a leap and see if it works. I look at like walking through another door. Just like temple grandin illustrates in her movie and books. If I didn’t read her work I don’t know if I would have to courage to try these new things without knowing what to do if it goes wrong. I’m really glad it didnt come down to that.
As many might know that feelings can be quite difficult for a child on the spectrum. Tonight was a classic example. We went to our favorite park to unwind. Thankfully we didn’t run into any trouble. My daughter decided to bring along her toy shopping cart where along the way insisted to collect pine cones on the way. Usually at the park she gets into a habit of collecting sticks which I’m trying to understand why. Anyways I gave the usual 2 minutes warning before we go. She was running around still collecting sticks we she came upon this little girl and chased her down for her stick unknowingly. Just grabs the it out of her hand. Now I could’ve brushed off to her not understanding but I decided to use it as a teaching moment. At first I asked her how she thought it made the girl feel to take the stick away. Responded by saying”happy” so definitely know feelings aren’t being understood. Playfully tried to take the stick from my daughter then asked her how does that make you feel and responded with”sad”. I tried in a way she can understand the little girl might have felt that way.
I have come so far in understanding my daughter so when things like this come up its a good challenge to work through.